At a young age, Libby became a family caregiver to her mother as she battled breast cancer. Shortly after her mother’s death, Libby became a parent to three sons who live with mitochondrial dysfunction, and in 2016 Libby was diagnosed with stage IV salivary gland cancer. These experiences over the course of decades shaped Libby’s passion for creating a person-centered health system. Libby strives to build the infrastructure and capacity for health care organizations to engage every patient and family member.
In 2010, Libby founded PFCCpartners to create a community of patients, families and health care stakeholders committed to the shared learning of patient- and family-centered care practice. PFCCpartners also supports the PFANetwork, which includes more than 1,000 patient family advisors in active partnership with health systems, measure developers, policymakers, quality improvement teams, and researchers across the country to improve the quality, safety, experience and design of health care.
PFCCpartners serves multiple CMS contractors to implement effective patient family engagement strategies across CMS quality improvement programs.