Patient Advocate Foundation

Commitment Statement:

In order to increase the LAN goal of adoption of alternative payment models (APMs) and to incentivize quality and value over volume, The Patient Advocate Foundation (PAF) believes patients need to play a central role in defining value and quality in health care. At PAF, we help patients overcome multiple barriers as they seek access to their health care and we carefully document the nature of the hurdles encountered and what was done, or could not be done, to deliver quality care.

PAF continues to take a leadership role in securing the best information on how patients interact with their health care. To that end, PAF has launched the Consumer-Based Cancer Care Value Index (CCCVI), a patient satisfaction survey tool designed to identify variations in the patient care experience and gaps in access to key support services. With this information, patients can help their providers better target the services they need and those that may be lacking in their care.

Our desire is to quickly engage multiple sites across the country to use this tool and then report back the experiences of the patient and what they value in their care and what was missing. The CCCVI provides novel ways of measuring care experience. The goals of the CCVI are:

  • To publish our results to understand which aspects of cancer care that are misaligned with patients’ values, what these may be and which are significantly associated with worse self-reported mental and physical health outcomes
  • A secondary goal is to inform future research to investigate whether prospectively providing cancer care that better aligns with patients’ values leads to better mental and physical health
  • A final goal is to take what we learn in the oncology setting and apply this to other disease areas

The CCCVI results can be used as a tool to build models in Category 3 (FFS Architecture) to incent and or reward care that address what an oncology patient values as demonstrated by the results obtained using the CCCVI. While the tool is focused on the care oncology patients receive, the site of care may well be independent, which means the results are applicable to either a primary care or specialist’s site.

As more data is collected and the dataset becomes richer across a larger oncology patient pool, it is conceivable that a population-based reimbursement model that focuses on incenting and rewarding care based on what a patient values can be developed .


Patient Advocate Foundation